NDSU: OUR FIRST YEAR FEBRUARY 21, 2002
INTRODUCTION
What follows is a lengthy summary of the
National Disabled Students
Union's activities during our first year of
existence. To make this
summary more broadly accessible, we have provided an
outline of the
various summary sections at the beginning of the document. The
summary
will be posted on the web at
http://www.birdnest.org/hallj1/ndsu.html
OUR
HISTORY/PREDECESSORS
WHERE DO WE GO FROM HERE
ADVOCACY/DIRECT-ACTION
UPDATE
LEGISLATIVE UPDATE
ORGANIZATIONAL STATUS/STRUCTURE
OTHER
ORGANIZATIONAL OPTIONS
NDSU NATIONAL OFFICE
DEVELOPING A MISSION AND
STRATEGIC PLAN
NDSU MEMBERSHIP/LEADERSHIP
ACCESS UPDATE
NDSU WEB
SITE
FINANCIAL STATUS
THE BRAID NEWSLETTER
LISTSERV
UPDATE
LEADERSHIP IN CHALLENGING DISCRIMINATION WITHIN THE MAINSTREAM
DISABILITY
CIVIL RIGHTS MOVEMENT AND WITHIN THE LEFT
IDEAS FOR THE
FUTURE
OUR HISTORY/PREDECESSORS
NDSU's historical model is the
Student Nonviolent Coordinating Committee
(SNCC), a radical student
organization that was one of the strongest
forces for social change in the
United States during the civil rights
movement of the 1960s. On April 17,
2001, exactly 41 years after SNCC
was founded, the newly-formed NDSU
organized the Leave Out for Equal
Justice, a coordinated demonstration of our
opposition to the Supreme
Court's elevation of states' rights over our civil
rights in the Garrett
decision.
Like our predecessors in SNCC, we
recognized the need for a concerted,
nationwide response that would put the
Supreme Court and the rest of the
American public on notice that we would
accept nothing less than full
participation, full justice, and the full
dignity and respect that we
deserve as equal human beings -- basic civil
rights which had been
painstakingly won by those who came before us, and
rights we refuse to
see weakened in any way.
WHERE DO WE GO FROM
HERE:
The success of the Leave Out for Equal Justice proved our ability
to
effectively mobilize on a national level. However, after the Leave
Out,
the question remained as to what we would do next. NDSU is fortunate
to
count among its first members disability rights leaders Barb Bechdol
and
Bruce Wolfe. Soon after the Leave Out, Bruce and Barb shared
some
wonderful thoughts with us on how NDSU can organize most
effectively,
including holding a truly accessible meeting of our national
membership.
Some of the original text from their messages is contained in
this
section.
ADVOCACY/DIRECT-ACTION UPDATE:
On April 17, 2001,
disabled students and our allies across the United
States participated in
NDSU's Leave Out, protesting the Garrett decision
and the Supreme Court's
pattern of weakening civil rights protections in
the name of "states'
rights." Though only nine-weeks-old at the time,
NDSU had already attracted
students from more than sixty primary and
secondary schools and colleges and
universities.
Six months later, five members of the NDSU Action Team met
in San
Francisco and decided to start planning another national action
to
protest the injustice of disabled students still being segregated by
a
separate and unequal educational system. Like the Leave Out, this
action
will provide the opportunity for NDSU members and our allies to
get
involved at both the local and national levels. The NDSU Action
Team
has also been discussing the possibility of creating a
traveling,
direct-action student network within NDSU who will take our
organization
directly to our people.
LEGISLATIVE UPDATE:
Over
the last year, our member-led advocacy efforts have focused on six
bills and
one judicial nomination. NDSU joined the rest of the
disability rights
community in speaking out against the nomination of
Jeffrey Sutton. NDSU's
actions helped postpone confirmation hearings for
Sutton in the Judiciary
Committee, giving civil rights advocates ample
opportunity to document
Sutton's record of judicial activism and make a
case as to why he lacks the
temperament to administer fair and impartial
justice to plaintiffs bringing
civil rights cases against state
agencies.
ORGANIZATIONAL
STATUS/STRUCTURE
OTHER ORGANIZATIONAL OPTIONS:
After extensive
research, including discussions with other progressive
organizers, the NDSU
Action Team has decided that it is not in NDSU's
best interest to adopt a
formal non-profit structure or obtain a fiscal
sponsor at this time. These
two sections detail the process involved in
reaching that
decision.
NDSU NATIONAL OFFICE:
The NDSU National Office is based
at Access Living. The contact
information for the office is: NDSU, c/o Access
Living of Metropolitan
Chicago, 614 West Roosevelt Road, Chicago, IL 60607,
Voice:
312-253-7000, Fax: 312-253-7001, TTY 312-253-0332, Web
site:
<ndsu@disabledstudents.org>.
DEVELOPING A MISSION AND
STRATEGIC PLAN:
This section provides the full text of NDSU's original
mission
statement, and discusses some options for how we can refine and
revise
our mission and strategic plan.
NDSU
MEMBERSHIP/LEADERSHIP:
Because of the multitude of economic barriers that
students with
disabilities and our allies face, NDSU does not charge dues.
Our
organization is run by the NDSU Action Team. Anyone who identifies as
a
disabled student can join the Action Team as long as s/he is willing
to
contribute in some way.
ACCESS UPDATE:
100% accessibility
has been one of NDSU's primary goals from its
inception. Happily, we expect
to soon receive the funding to take the
practical measures needed to
implement this goal. This section details
our plans and past frustrations in
attempting to become accessible to
everyone.
NDSU WEB
SITE:
This is a discussion of the history of our web site and listserv,
some
of the barriers that we have encountered, the steps we are taking
toward
removing those barriers, and some other possible options for further
web
site development in the future.
FINANCIAL STATUS:
A brief
outline of the monetary contributions NDSU has received to date.
THE
BRAID NEWSLETTER:
Late last spring, we began development of The Braid, a
quarterly student
periodical. Efforts were halted by the lack of
accessibility. As a
result, the newsletter discussion became a research
project on
accessible communication. Plans for The Braid are suspended
until
accessibility issues have been resolved.
LISTSERV
UPDATE:
Our listserv currently has 230 members from all over the globe.
We use
this Internet messaging system to communicate with other NDSU
members
and update each other about current court cases; discuss activities
that
disabled students may want to read, learn, and participate in;
and
spread other relevant information about disability issues. It is also
a
place to connect and network with other students who are interested
in
disability issues. Issues arose very early concerning the
accessibility
of the listserv, and we are working to address those issues
effectively.
LEADERSHIP IN CHALLENGING DISCRIMINATION WITHIN THE
MAINSTREAM DISABILITY
CIVIL RIGHTS MOVEMENT AND WITHIN THE LEFT:
SNCC
was highly critical of the mainstream civil rights movement. In the
same way,
NDSU has taken the lead in challenging the mainstream
disability civil rights
movement and pushing it to live up to the ideals
it preaches. In December of
last year, NDSU members Laura Obara and
Sarah Triano wrote a critique of the
mainstream disability civil rights
movement and the way in which it leaves
out key groups of people with
disabilities that was widely published
throughout the nation.
IDEAS FOR THE FUTURE:
While NDSU is
committed to removing the barriers to access within our
organization before
undertaking full-scale planning efforts, the
enthusiasm, creativity and
skills of our membership have resulted in the
proposal of some exciting ideas
for the future, including organizing a
national meeting in the fall,
expanding into an international
organization, and developing an online
Disability Studies bookstore that
would both help empower our members and
generate revenue for NDSU.
END OF OUTLINE
BEGINNING OF FULL SUMMARY
NDSU ORGANIZATIONAL
UPDATE:
Note: The following section is a brief overview of our history
and
historical role models. You can go directly to the first update
by
searching for the text, "ADVOCACY/DIRECT-ACTION UPDATE."
OUR
HISTORY/PREDECESSORS:
On February 1, 1960, four students from North
Carolina Agricultural and
Technical College went into the downtown
Woolworth's, sat at the lunch
counter, and refused to move when they were
denied service on the basis
of their skin color. Within weeks, hundreds of
students followed this
example and staged sit-ins at lunch counters across
the country.
Although these acts of non-violent protest seem fairly
simple by today's
standards, one prescient leader at the time, Ella Baker,
recognized them
for what they were: the beginning indications of a revolution
of
empowerment that would propel the issue of racial discrimination
into
the consciousness of mainstream America, and thereby further the
civil
rights movement started decades before by Baker and her
predecessors.
Acting on this recognition, Baker immediately secured eight
hundred
dollars from the Southern Christian Leadership Conference in order
to
bring student leaders together for a two-day conference at
Shaw
University, which resulted in the founding, on April 17, 1960, of
what
would become one of the strongest forces for social change in the
1960s
the Student Nonviolent Coordinating Committee (SNCC).
THE
REVOLUTION CONTINUES:
Exactly 41 years later, on April 17, 2001, student
leaders with
disabilities across the country kicked off the founding of the
National
Disabled Students Union (NDSU) -- the first nationwide,
cross-disability
student organization in US history, -- with a coordinated
demonstration
of our opposition to the Supreme Court's elevation of states'
rights
over our civil rights in its decision in the Board of Trustees of
the
University of Alabama, et al. v. Garrett, et al.
Like our
predecessors in SNCC, we recognized the need for a concerted,
nationwide
response that would put the Supreme Court and the rest of the
American public
on notice that we would accept nothing less than full
participation, full
justice, and the full dignity and respect that we
deserve as equal human
beings -- basic civil rights which had been
painstakingly won by those who
came before us, and rights we refuse to
see weakened in any way.
We
refuse to take it anymore, so instead, we took our fight to the
streets by
leaving our classes, homes, and jobs on April 17, 2001
in
protest.
WHERE DO WE GO FROM HERE:
With the success of the
Leave Out for Equal Justice, NDSU proved our
ability to effectively mobilize
on a national level. After the Leave
Out, however, the question remained as
to where we would go from here.
In her book, Freedom's Daughters, Lynne Olson
writes the following of
the student sit-in leaders of the 60s: "One month
after the sit-ins
began, there seemed to be no communication among the
scattered groups of
demonstrators, no idea of joining together and forming
one potent source
of mass protest" (p. 148).
It was at this point,
according to Olson, that Ella Baker stepped in and
suggested the meeting at
Shaw University for the purpose of uniting the
students and defining an
organizational structure. Similarly, Bruce
Wolfe sent a message to the NDSU
list asking for feedback on, "having a
national conference but in a way that
for those who cannot travel or are
lacking funds to travel to be able to
access to all of the events and
workshops that would happen through the
Internet by using streaming
media, chat rooms, etc."
At the same time,
Barb Bechdol wrote the following to the NDSU list:
"NDSU follows a long
and illustrious tradition of student groups
kick-starting revolutions. NDSU
needs to:
"1. Mobilize disabled students and increase membership at new
and old
member schools.
"2. Involve other disabled
activists.
"3. Form coalitions with other progressive minority groups
with civil
rights agendas.
"4. Hit the establishment with such a large
multi-faceted bloc that
change results.
"Random Thoughts:
"PWDs
and others "get it" at different levels.
"Old timers put some good things
in place. Don't re-invent the wheel.
"New ideas and new blood are sorely
needed.
"The Braid is a very powerful symbol!
"Gathering people
with disabilities in one physical space is a
monumental undertaking. Involve
those who succeeded.
"Make sure people stuck at home or locked up can
participate
(phone/online/?)"
Inspired by Bruce and Barb's calls to
action, members of the NDSU Action
Team immediately started working to put
the infrastructure in place that
we would need to carry out such actions and
goals.
ADVOCACY/DIRECT-ACTION UPDATE:
At 1:00 pm EST on Tuesday,
April 17, 2001, hundreds of disabled students
across the United States
participated in NDSU's Leave Out by
simultaneously leaving our classes,
homes, and jobs to protest the
Garrett decision and the Supreme Court's
pattern of weakening civil
rights protections in the name of "states'
rights." Though only
nine-weeks-old, NDSU had already attracted students from
more than sixty
primary and secondary schools and colleges and universities.
The
enormous success of the Leave Out was recognized in many
publications,
including "New Mobility," "Mouth Magazine" and "iCan
Online."
Since that time, two arms seem to have emerged within NDSU: one
arm
working primarily within the system on legislative and other issues;
and
another arm working primarily outside the system (or rather
putting
pressure on the system) through direct action and advocacy
efforts.
In October of 2001, five members of the NDSU Action Team met in
San
Francisco and decided to start planning another national action
to
protest the fact that disabled students of all ages and at all
grade
levels are still being offered separate and unequal education. Like
the
Leave Out, this action will provide the opportunity for NDSU members
and
our allies to get involved at both the local and national levels. If
you
would like to be more involved in the discussions regarding this
action,
please contact Jessie Lorenz at jessie@ilrcsf.org.
In addition
to planning for a large, national action, the NDSU Action
Team has also been
seriously discussing the possibility of creating a
traveling, direct-action
student network within NDSU that will take the
organization to the people in
order to:
1. Support the development of local, grassroots
leadership;
2. Facilitate coordinated action by local groups; and
3.
Specifically organize locally around situations where students
with
disabilities and other members of our community are subjected
to
discrimination.
We realized from the start that this traveling
group of activists would
need to be not only cross-disability, but also
cross-movement based. As
such, Joe Hall and Sarah Triano attended the
National Conference on
Organized Resistance in January 2002 to try to start
building ties to
other radical movements across the United
States.
LEGISLATIVE UPDATE:
NDSU has been very active over the
last year on the legislative front,
and looks forward to facing new
challenges and applying new strategies
in the year to come. Over the last
year, our member-led advocacy efforts
have focused on six bills and one
judicial nomination. Thanks to our
dedicated members, we have made great
strides; however, we still have
much more to accomplish.
NDSU joined
the rest of the disability rights community in speaking out
against the
nomination of Jeffrey Sutton. NDSU's actions helped
postpone confirmation
hearings for Sutton in the Judiciary Committee,
giving civil rights advocates
ample opportunity to document Sutton's
record of judicial activism and make a
case as to why he lacks the
temperament to administer fair and impartial
justice to plaintiffs
bringing civil rights cases against state
agencies.
However, in the wake of 9-11, the White House and Senate
Republicans are
trying to use the war against terrorism to advance judicial
nominations.
Latest reports indicate that the Senate might make a move on
Sutton
sometime this year. Therefore, it is important that we continue
to
contact our senators and remind them that Sutton's nomination
still
poses a threat to the civil rights and equal protection of millions
of
disabled Americans.
Since 2002 is an election year for all 435
members of the House of
Representatives and for 34 Senators, we need to make
certain that our
issues take center stage. Please help us make sure that our
issues are
up front and readily apparent to both the media and candidates. We
must
get Senator Dodd's Voting Rights Bill passed in the Senate and
ensure
that its access provisions are incorporated in the reconciliation
voting
rights bill and enacted as law. We also will continue to work to
ensure
that MiCASSA and the Homebound Clarification Act become law, and
that
Olmstead is carried out in good faith. We must also fight against
the
ADA Notification Act, and make sure that if it is reintroduced it
dies
in committee, like it did last session.
Over the last year NDSU
has relied on its members to do the bulk of the
advocacy work on the
legislative front. Most members have sent letters
to their representatives.
Others have used e-mail, faxes and phone
calls. All of these methods are very
important and very valuable.
Because our membership does the bulk of the
work, the Action Team is
interested in your ideas on how we may better serve
you and keep you
informed and on possible new strategies or advocacy issues
for the
future.
Please e-mail Joe Hall at hallj1@winthrop.edu with any
thoughts or
suggestions you might have.
ORGANIZATIONAL
STATUS/STRUCTURE:
501c3:
One of the first issues NDSU tackled was
whether or not to become a
non-profit organization. After much consideration,
the Action Team has
decided that it is in NDSU's best interest to forego a
formal corporate
or fiscal structure at this time.
Early on, Maureen
Horowitz, Laura Obara and Sarah Triano did quite a bit of
research into
non-profit status and the legal and fiscal requirements
of
forming/maintaining non-profit structures.
Sarah Triano and Laura
Obara spoke with many people who are currently
running non-profits, most of
whom concurred that the process of becoming
a 501c3 was valuable because it
helped define the organizations goals,
purpose, and mission, and provided an
incentive for tax-deductible
donations.
However, they also said that,
during the first two to five years, at
least 25% of their organization's time
went into the bureaucracy and
paperwork legally required to maintain a
non-profit, taking time away
from more valuable activities, such as direct
action and response.
Several people who NDSU members consulted said that it
was not
advantageous to form a 501c3 until an organization was well
established
and had enough money to hire someone to handle the additional
work.
In January 2002, Joe Hall and Sarah Triano attended the
National
Conference on Organized Resistance in Washington, DC. While there,
Joe
and Sarah learned how other radical organizations are structured
in
order to operate effectively and legally without buying into
the
philosophy or participating in actions that further
corporate
domination.
History also informed our decision not to pursue
501c3 status at this
time. SNCC was very political and had members all over
the country.
Action Team members wondered how SNCC did it and what
their
organizational structure was conducted further research. Thanks to
an
FBI file on SNCC that Sarah Triano uncovered, NDSU members were able
to
view some of SNCC's primary source documents. What we learned is
that
SNCC was never a formal, legal organization, much less a 501c3,
and
therein lay a great deal of SNCC's power.
Becoming a 501c3 would
also place certain restrictions on our political
activities Since NDSU is an
overtly political organization, the Action
Team decided that it would not be
in NDSU's best interest to impose
these limitations on our
activities.
Sarah Triano has begun the process of obtaining a tax
identification
number for NDSU and opening a bank account at a community bank
in
Chicago so that NDSU can maintain the least restrictive
structure
allowed by law. Should we decide to become a 501c3 in the future,
Howard
Rosenblum, a Chicago-area attorney with a disability, has
graciously
offered to assist us in that effort.
OTHER ORGANIZATIONAL
OPTIONS:
Several other organizational structures were also explored,
including
becoming a 501c4 and obtaining a fiscal sponsor. Access Living
of
Metropolitan Chicago (a center for independent living) indicated
a
possible interest in becoming NDSU's fiscal agent/fiscal
sponsor.
(Fiscal agents receive tax-deductible donations on behalf
of
organizations that do not have non-profit status.)
Members of the
NDSU Leadership Action Team met with Access Living
representatives on Monday,
January 14th to discuss this possibility.
During the meeting, it was conveyed
to members of the NDSU Action Team
that, for Access Living to help in this
way, NDSU would understandably
have to abide by Access Living's guidelines
for handling money,
including deferring to Access Living in the event of
competition for
funding. Access Living would also become legally liable for
NDSU and the
actions of NDSU.
Members of the NDSU Action Team felt
that this would obstruct NDSU's
ability to perform and operate the way we
must to effectively pursue our
goals. We decided that, since part of NDSU's
power is our autonomy,
fiscal sponsorship would require relinquishing too
much of this
autonomy. Therefore, the NDSU Action Team decided not to
pursue
acquiring a fiscal sponsor at this time.
NDSU NATIONAL
OFFICE:
Soon after NDSU was founded, Access Living of Metropolitan
Chicago
offered us a temporary space, a place to call home. The NDSU
National
Office is currently based at Access Living and will continue to be
until
we have generated enough funds to secure our own office space.
The
contact information for the office is: NDSU, c/o Access Living
of
Metropolitan Chicago, 614 West Roosevelt Road, Chicago, IL
60607.
312-253-7000, 312-253-7001 (fax), and 312-253-0332
(tty),
ndsu@disabledstudents.org.
DEVELOPING A MISSION AND STRATEGIC
PLAN:
Before the Leave Out in April, we wrote the following mission
statement
for NDSU:
"The National Disabled Students Union (NDSU) is a
nationwide,
cross-disability, student organization. We recognize all disabled
people
- those with traditionally recognized disabilities and those who
have
often been left out of the movement - as our brothers and sisters,
and
we recognize all students - those who work to learn, whether or not
they
are at recognized schools - as our colleagues.
"NDSU was founded
on February 21, 2001 in response to the US Supreme
Court decision limiting
the enforcement of Title I of the 1990 Americans
with Disabilities Act (Board
of Trustees of the University of Alabama,
et al. v. Garrett, et al.).
Students with disabilities throughout the
United States recognize the
far-reaching impact of this decision, and we
oppose the Supreme Court's
pattern of undercutting civil rights
legislation in America. Although the
Garrett decision still requires
the states to treat disabled and non-disabled
employees equally, it
makes enforcement more difficult.
"The US
Supreme Court has weakened other civil rights laws besides the
ADA (including
the Age Discrimination in Employment Act and the Violence
Against Women Act),
and we are concerned about this trend. We wonder
whose rights are next and
how long we will have the guarantee of
equality. We are committed to
everyone's right to equal protection
under the law and equal rights within
society, and we don't want to wake
up a year or a decade from now wishing
we'd acted earlier.
"We recognized the need for a concerted, nation-wide
response that would
put the Supreme Court and the rest of the American public
on notice that
students with disabilities in this country will no longer
accept
anything less than full participation, full equality, full justice,
and
the full dignity and respect that we (and all people) deserve as
equal
human beings. Therefore, on Tuesday, April 17, 2001, we came
together
with our allies in a nationwide demonstration of our opposition to
the
Court's actions.
"We will mobilize and organize students with
disabilities throughout the
nation in order to continue the legacy of
empowerment and community
solidarity that is our heritage. As one of the
great leaders of our
movement, Justin Dart, once said, 'We are here, we are
united, and we
are proud.' We will work to ensure that all disabled students
have the
opportunities they need to learn, the opportunities they need to
live
and work, and the opportunities they need to be full participants
in
their communities and full members of American society."
It has
been almost a year since we wrote this Mission Statement, and
there is a
definite need to go over it and make revisions where
necessary. In addition,
we have yet to go through a formal process of
developing a strategic plan to
outline NDSU's goals and tactics. A
leadership coach by the name of John
Mitchell has offered to assist NDSU
in this effort. Mr. Mitchell runs the
Purple Coach, a business that has
garnered national acclaim for successfully
empowering individuals and
organizations to develop their leadership
potential. He comes highly
recommended by Public Allies of Chicago and
several people at Access
Living, and has generously offered to do a few
strategy sessions with
NDSU at no charge.
NDSU
MEMBERSHIP/LEADERSHIP:
One of the first issues the Action Team addressed
was whether or not
NDSU should charge membership dues. It was unanimously
agreed that,
because of the multitude of economic barriers that students
with
disabilities and our allies face, NDSU should not charge
membership
dues.
This decision was also historically informed by
SNCC's choice not to
become a formal, membership organization. (In other
words, its members
didn't pay dues and get some card or trinket.) Like SNCC,
the NDSU
Action Team believes that it is to our organization's advantage to
make
membership as independent of economic status as we possibly
can.
Therefore, when Matt Grillot and Sarah Triano created a formal
brochure
for NDSU, they included a membership form for purposes of recruiting
and
maintaining contact with NDSU members, but filling out the form
will
never result in a solicitation for dues or funds of any kind. If
you
would like a copy of the brochure, please contact the NDSU
national
office. We hope to have it online very soon as well.
We have
also recently begun efforts to recruit more NDSU members to the
Action Team.
The Action Team is comprised of the volunteers who are
responsible for
running NDSU. We appreciate that everyone's time is
precious -Being a part of
the Action Team is not a 24-hour/7-day-a-week
job, nor is it dependent upon
computer access, verbal communication, or
ability to physically attend
meetings. Anyone who identifies as a
disabled student can join the Action
Team as long as s/he is willing to
contribute in some way. If you have an
interest or skill that you would
like to share with NDSU, please send an
e-mail to
ndsu@disabledstudents.org, or call 312-253-7000 x
200.
ACCESS UPDATE:
Right from the start, NDSU has tried to
maintain a policy of "if
everyone cannot participate, then no one will
participate." This has
resulted in a long delay in many efforts until
everyone's access needs
can be met. As a new, volunteer-run organization, we
soon discovered
that our progress was seriously impeded by the lack of
published
materials addressing the access requirements of people who
have
traditionally been excluded from the disability rights
movement.
Unfortunately, many members who had generously contributed their
time
and creativity to NDSU and the organization of the Leave
Out
understandably left NDSU when their access requirements were
not
effectively addressed, and because some NDSU members behaved in ways
that
were disrespectful of others' needs regarding accessible
communication.
As a result of Daniel Davis graciously volunteering to
donate his Hearne
Award to NDSU, we are about to receive funding that will
empower us to
begin to make NDSU accessible to everyone. During our January
20, 2002
membership meeting, it was decided that access is to be a top
budgetary
priority. To this end, we are currently seeking to hire consultants
who
have made advances in the field of accessible communication. It is
our
goal that these consultants will establish procedures that NDSU
members
can then refine and maintain. We need to put together an
accommodations
committee within NDSU that can address these issues as they
arise, and
also be proactive in our efforts.
What follows is a history
of some of the barriers we encountered early
on.
Soon after the Leave
Out, we were holding online, weekly chat meetings.
At first, we used
Microsoft's Instant Messenger which proved to be
inaccessible for
participants with learning disabilities, so we switched
to AOL AIM, which
proved to be inaccessible for participants using
screen readers. At that
point, we tried using TRIPIL, which was
inaccessible for people who could not
type as quickly as others. In
addition, it was brought to our attention that
the times we were holding
the chats were inaccessible for younger members who
needed to go to
school early the next morning. We decided to suspend our
weekly chat
meetings until we could resolve these conflicting access needs
and find
a medium accessible for all.
Issues also arose concerning the
accessibility of the listserv.
Participants were sending articles to the list
in complicated language
that was difficult to understand. When asked to
translate these articles
into language that was easy to understand, many
participants refused and
ended up dropping off the list.
An
accommodation request was also made to have everyone use list topics.
When
participants refused to comply with this request, members of the
NDSU Action
Team put a halt to all listserv activity. Since that time,
more people have
been making an effort to use list topics, but we still
need to work on that
area. The list is currently being moderated to
assist members in making sure
they are using the list topic function
correctly, and Action Team members are
discussing changing the topic
titles to titles that will be more readily
understood by everyone.
Another accessibility issue that has come up is
the issue of economic
access. Many students with disabilities and other
potential members of
NDSU do not have access to computers and the Internet.
Since we are
still primarily an online organization, we have yet to become
accessible
to many potential members.
NDSU WEB SITE:
Prior to
the Leave Out, Stephanie Takemoto, Sarah Triano, and Catherine
Alfieri
developed a very basic NDSU web site for press and informational
purposes. At
the time, we were able to complete these efforts and
purchase the domain name
www.disabledstudents.org with a $400
contribution we received from the Kids
as Self Advocates (KASA). We were
not able to do much else with the web site,
however, due to a lack of
funding, expertise, and time.
We will soon
receive the funding to pay for the creation of a permanent
NDSU web site that
would be accessible and include, among other things,
an accessible and
user-friendly discussion board and other online
organizing tools. The volume
of messages sent to the NDSU listserv is
overwhelming for many. The use of a
discussion board where people could
post articles, network, and engage in
conversations without adding to
the volume of e-mails sent to the NDSU
listserv would help address this
barrier.
Joe Hall has contacted the
American Foundation for the Blind to see how
they created the discussion
board on their web site so that we can use
that as a model. Largely based on
leads provided by Cal Montgomery,
Maureen Horowitz has been compiling a list
of organizations and
individuals who have addressed the communications access
requirements of
people who have traditionally been excluded from the
disability rights
movement, including people with cognitive impairments,
people who don't
read, people who don't have access to computers, and people
for whom
sign language is the most accessible form of communication.
Sarah
Triano and Stephanie Takemoto and Marketoe A. Day have been
researching
accessible software and/or web sites.
In late 2001, the
Mitsubishi Electric America (MEA) Foundation contacted
members of the Action
Team and strongly encouraged us to apply for one
of their grants. The MEA
Foundation's mission is to use technology to
empower young people with
disabilities. Over the next year, we will
consider applying for an MEA
Foundation grant to support our web site
and listserv accessibility
endeavors.
We are also in need of a permanent web site team who can
monitor the web
site and keep it up to date on a daily
basis.
Financial Status:
NDSU Co-Founder, Daniel Davis, was
awarded a Hearne Leadership Award in
the amount of $10,000 which he has
graciously promised to donate to
NDSU. We have also received a $400
contribution from Kids as Self
Advocates, and some donations from individuals
who support our work.
The NDSU Action Team has identified several grants
to support our
efforts, but NDSU is in need of a fiscal team that could lead
and direct
our efforts in this area, assist with writing grant applications,
and
track donations/contributions and spending.
THE BRAID
NEWSLETTER:
During the past year, we began the development of NDSU's
quarterly
student periodical, The Braid. Here, too, efforts were halted
when
Maureen Horowitz, Joe Hall, Sarah Triano, Cal Montgomery, Isaac
Huff,
Sharon Lamp, Dan Davis and Barb Bechdol quickly realized that
there
weren't materials available on which to model accessible
communication
about starting the newsletter, much less the newsletter itself.
As a
result, what began as discussion of a newsletter became, in
many
respects, a research project on accessible communication. Plans for
The
Braid are suspended until the accessibility issues have been
resolved.
LISTSERV UPDATE:
The lifeline of the National
Disabled Students Union is our listserv;
currently we have 230 members from
all over the globe. We use this
Internet messaging system to communicate with
fellow members and update
each other about current court cases; activities
that disabled students
may want to read, learn, and participate in; and
spread other relevant
information about disability issues. It is also a place
to connect and
network with fellow students who are interested in disability
issues.
Halfway through the year, Sarah Triano found that she was unable
to keep
up with the duties of managing the listserv by herself due to
chronic
illness. Stephanie Takemoto stepped in and offered to assist
in
moderating the listserv.
Issues arose very early concerning the
accessibility of the listserv, as
noted in the access and web site update
sections above.
As the result of an accommodation request, we now use
list topics -
CURR, ORG, GOV, DS, and ANN - to help sort the messages into
categories
that make it a little easier to manage. A list topic is added to
the
beginning of the subject to help the computer sort the
messages.
Example:
Subject: CURR: Supreme Court Ruling . .
.
A member will only receive messages that have topics that match the
ones
subscribed to.
To unsubscribe to the list:
a. Send a
message to: listserv@listserv.uic.edu
b. In the body of the message, type:
SIGNOFF NDSU
If you are subscribed to the NDSU listserv, you can change
your
subscription to get any or all of these of these topics by going
to
<http://ness.uic.edu/htbin/wa?SUBED1=ndsu&A=1>.
If you
would like to add yourself to the NDSU listserv please
visit
www.disabledstudents.org <http://www.disabledstudents.org>
for
instructions.
Please contact Stephanie Takemoto at
stakemoto@socal.rr.com
<mailto:stakemoto@socal.rr.com> or Sarah Triano
at
ndsu@disabledstudents.org <mailto:ndsu@disabledstudents.org> if you
have
any problems or questions.
LEADERSHIP IN CHALLENGING
DISCRIMINATION WITHIN THE MAINSTREAM DISABILITY
CIVIL RIGHTS MOVEMENT AND
WITHIN THE LEFT:
Paying attention to history once again, SNCC was highly
critical of the
mainstream civil rights movement. In the same way, NDSU has
taken the
lead in challenging the mainstream disability civil rights movement
and
pushing it to live up to the ideals it preaches. In December of
last
year, NDSU members Laura Obara and Sarah Triano wrote a critique of
the
mainstream disability civil rights movement and the way in which
it
leaves out key groups of people with disabilities that was
widely
published throughout the nation. The title of the piece was
"Welcome
Home to Disabled Country." It can be found in Mouth Magazine #69 and
on
the Justice for All list archives.
In addition to being critical of
the mainstream civil rights movement,
SNCC insisted that the focus of their
group be the development of
grassroots leadership and direct action at the
local level. They didn't
restrict membership to students. Some of them
dropped out of school for
SNCC and some of the members included such people
as Fannie Lou Hamer -
a 43-year-old sharecropper from Mississippi who had a
disability.
Though the Southern Christian Leadership Council (SCLC) was
very
interested in making SNCC the "youth arm" of SCLC, SNCC wanted
nothing
to do with it. SNCC insisted on their own autonomy and
independence
from every organization within the system. The NDSU Action Team
also
believes that maintaining our independence and autonomy with
other
organizations from a position of strength will help our
organization
continue to fight against injustice and exclusion within the
disability
rights movement and elsewhere.
IDEAS FOR THE
FUTURE:
NDSU has tried to remain committed to the policy of, until
everyone can
participate, no one will participate. This, in part, has led to
a sense
that nothing is happening in the organization. In fact, we are
taking
the time to try and address the access issues that have come up, and
we
are making that a priority. Until we adequately address these issues,
it
seems futile to discuss ideas for the future. Even so, we think it
is
useful to mention a few of the ideas on the horizon:
1. A national
meeting in the fall, as originally proposed by Bruce Wolfe
(see Sarah
Triano's proposal below);
2. Going international. We have received
several requests from students
with disabilities in other countries to create
an International Disabled
Students Union. We could kick this off by planning
for an international
student leadership conference; and
3. An online
Disability Studies bookstore to generate revenue and income
for
NDSU.
A proposal for an NDSU National Meeting (listening to the winds
of
history):
After SNCC held sit-ins across the country in April of
1960, the first
thing they did was get together for a national meeting of
student
leaders for two days in Atlanta (which was largely funded by
the
Southern Christian Leadership Council). At that meeting, they
defined
their mission, goals, and purpose. They also elected
state
representatives, while simultaneously maintaining a fairly
loose
organizational structure. Most importantly, at this meeting, they
got
the chance to connect on a very personal level. In an account of
the
meeting by Julian Bond, he stresses how very powerful it was to
meet
with some of the people he had only corresponded with via letters,
and
read about in papers.
The Action Team will discuss following
SNCC's example and holding an
in-person national meeting of disabled students
("students" in the
broadest sense of the word) and our allies before the end
of 2002. At
this meeting, we would discuss the mission, goals, and purpose of
NDSU.
It would be a strategic planning meeting. We would also have a chance
to
just get to know each other a little more and have fun! There would
be
no boring speakers lecturing to us, no workshops telling us how to
be
leaders. We are already leaders and it is time that we lead and call
our
own shots.
We would invite some of the founding members of SNCC to
join us and
offer guidance and advice, as necessary. Unlike SNCC, which
planned
their meeting in less than a month, we would need to spend
several
months planning this meeting to ensure accessibility and the
equal
participation of all. As Barb Bechdol suggested nearly a year ago,
we
can rely on NDSU members and allies who have successfully
coordinated
disability conferences in the past to help achieve 100%
accessibility at our
conference. We could look into funding to not only
get people to the meeting,
but to also make sure that we get people
involved who are institutionalized
or at home. We could talk about the
specific ways that we want to start
developing grassroots leadership and
taking our message to the
people.
When some NDSU members attended a leadership conference a few
years ago,
they had to listen to one boring speaker after another from a
notorious
federal Agency who supposedly told them how to be effective
leaders.
When they asked why these people had been allowed to speak, they
were
told that, since this Agency was funding a majority of the
conference,
the agency had to have some say in selecting the speakers. We
will have
NONE OF THAT at our meeting.
This will not be a traditional
conference/action like most organizations
in the disability community put on
- i.e. they charge $200 to attend,
have inaccessible housing, inaccessible
food, a lack of diversity (and
even hostility toward diversity), and a
variety of boring speakers who
preach at you.
This would be *our*
meeting - a time *for us* to meet, plan, lead, and
simply enjoy each other's
company while also challenging each other. We
could also hit the streets and
pound the pavement, and take our meeting
to those locally who cannot attend
because they are locked in an
institution or home.
SNCC leader, John
Lewis, once said, "The revolution is at hand, and we
must free ourselves of
the chains of political and economic slavery and
all of us must get in the
revolution. Get in and stay in the streets of
every city, every village and
every hamlet of this nation, until true
Freedom comes, until the revolution
is complete." The revolution is,
indeed, at hand and NDSU is takin' it to the
streets.
This update could not have been accomplished with out the
dedication of
a few members of NDSU's Action Team. Maureen Horowitz, Sarah
Triano, Joe
Hall, Daniel Davis, Stephanie Takemoto, Marlin Thomas, and Kathy
Coleman
put a lot of time into this document and deserve NDSU's
sincere
gratitude.
REMEMBER GARRETT, REMEMBER THE BRAID.
NDSU's
awesome power and strength comes from our members. Without our
members, NDSU
would not exist. The Action Team would like to thank all
of the dedicated
members of NDSU who helped build our great
organization. As Cal Montgomery
once wrote, "We use a braid to
demonstrate our commitment to the way a
diverse group of strands can
come together to make something strong and
sure." This has been proven
though NDSU's accomplishments over the last
year.
While we have come a long way, we still have many battles to fight.
The
NDSU Action Team is more excited than ever about these new
challenges
and views them as avenues to build and develop an even stronger
and more
inclusive movement. Please join us in our fight. Together we can
break
down the barriers and work toward social justice for
all.